Hello, we are Marla and Ron Chapleau and we have 3 children, all of whom are adults now. It is...
FAMILIES
Meet Lorenzo and his family in Italy!
Lorenzo is 16 years old and has MLC1. We found out about the disease when he was 8 months old;...
Meet Kuzey from Turkey!
My son Kuzey was born at 31 weeks. He stayed in the incubator for 1 month and was released with...
Meet Carlee and her family in the US!
In the spring of 2022 our youngest daughter Carlee had a seizure. In the days and months that followed, an...
Meet the Haeger family in the US!
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