The ULF Family Conference takes place on June 28-29, 2024 in Chicago. It is an important annual event where affected families have access to the world’s top leukodystrophy physicians and researchers. Held over two days, the conference aims to provide the latest scientific information to keep families informed on advances in the field, and also guide them on improving the quality of their life, while living with a leukodystrophy patient.
There will be an MLC session which we are currently putting together and will update you as soon as the line up of speakers is finalized. The session will include a presentation by Dr. Van der Knaap and other MLC experts who will provide an update on ongoing research, the patients registry we are starting, and the MLC experience in a particular region of the world. You will also get to hear all about our patient advocacy group, Alliance MLC, and the exciting outcome of our recently completed first MLC Scientific Symposium held in Amsterdam on February 22-23, 2024 and our future plans. It is crucial that families, especially those based in the US, attend this important event. If you have any questions or need assistance, please contact us.
To register click here.
