Become a Country Ambassador

The Alliance MLC Country Ambassadors act as delegates of our organization in their own country. They connect with families affected by MLC, provide them with support and useful resources that can make their everyday lives more manageable. They help us fundraise so we can achieve our mission to accelerate research and find a treatment for MLC. If you would like to become a Country Ambassador, please get in touch with us today.

Fundraise for Alliance MLC

Fundraising is essential in everything we do. It helps us find a treatment for MLC and cure our kids and future generations.

Our current fundraising priority is raising the necessary funds for an international MLC Registry, a freely accessible database of MLC patients with important data for researchers, physicians and, ultimately, pharmaceutical companies.

Join our fundraising efforts in whichever way you are able to. You can make a donation or fundraise for Alliance MLC. Please be generous. The lives of our kids are depending on us. Here are some of the ways you can be involved and make a difference:

  • Make a donation
  • Ask your family and friends to make a donation
  • Host a Facebook fundraiser
  • Organize a walk or sports tournament
  • Host an event in your city
  • Enroll in Employee Matching gifts

We can help you plan and execute your fundraising ideas. Contact us and we will get started!

Make a Donation

With your support, Alliance MLC can achieve its mission to:

    1. Create a global MLC Registry and accelerate research to find a cure for MLC
    2. Provide families the support they need to cope with this rare disease

If we, the families and their friends, don’t do this, no one else will. Together we will fight for the day MLC is cured!

Thank you for helping us reach our ultimate goal.

We have partnered with KBF Canada, an international philanthropic network that brings together donors, philanthropists, and organizations that are ready to change the world!. Through KBF, we currently accept tax-deductible donations from Canada, and the US. For any questions or to make a donation, please contact Christina Marouda at christina.marouda@AllianceMLC.org.

Join us on Facebook

In 2020, we started the private Facebook group MLC Families. This is an open forum and a safe environment for families to connect with each other, share their worries, ask questions, provide advice to fellow MLC affected families, and exchange invaluable information about their MLC journey. Join this group today!

We also have an official Facebook page for our nonprofit organization. This page is accessible to everyone and you can also follow it to stay up to date with all Alliance MLC activities.

Attend an Event


Join our team as a volunteer offering your skills and expertise. There are many ways to be involved. You may offer a hand in our fundraising efforts, help us organize an event, amplify our outreach efforts or provide administrative help. We’d be happy to have you in our team!


Participate in the Patients Registry.
Make a donation to help us fund this project.
If we do not do it, no one else will!


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