The first ever MLC Scientific Symposium took place on February 22-23, 2024 hosted by Alliance MLC. Physicians and researchers around the world convened in Amsterdam for two days to discuss their research and decide the way forward. All attendees were greatly appreciative of this unique opportunity to meet and learn from one another, spend time...
The ULF Family Conference takes place on June 28-29, 2024 in Chicago. It is an important annual event where affected families have access to the world’s top leukodystrophy physicians and researchers. Held over two days, the conference aims to provide the latest scientific information to keep families informed on advances in the field, and also...
Our MLC Consortium, a group of clinical MLC experts founded this year, has just released their first statement in the Pediatric Neurology journal. Their editorial letter examines a recent publication of two patients with MLC who received a drug called Anakinra, typically used to treat arthritis in children. According to the published case report, the...
Alliance MLC, with the support of our International Medical Consortium, is establishing a global patient registry. A registry is a secure international database that contains all the relevant demographic, genetic and disease specific information of those affected by this disease. The MLC registry is a key tool for researchers and critical to finding a treatment....
The ULF Family Conference takes place on June 23-24, 2023 in Chicago. It is an important annual event where affected families have access to the world’s top leukodystrophy physicians and researchers. Held over two days, the conference aims to provide the latest scientific information to keep families informed on advances in the field, and also...
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