Our MLC Consortium, a group of clinical MLC experts founded this year, has just released their first statement in the Pediatric Neurology journal. Their editorial letter examines a recent publication of two patients with MLC who received a drug called Anakinra, typically used to treat arthritis in children. According to the published case report, the...
Alliance MLC, with the support of our International Medical Consortium, is establishing a global patient registry. A registry is a secure international database that contains all the relevant demographic, genetic and disease specific information of those affected by this disease. The MLC registry is a key tool for researchers and critical to finding a treatment....
We are planning the first ever MLC Scientific Symposium on February 22-23, 2024! Physicians and researchers around the world will convene in Amsterdam for two days to discuss their projects. They will collaborate with the goal of creating a strong and fully aligned MLC network of scientists who will work together to advance MLC research...
The ULF Family Conference takes place on June 23-24, 2023 in Chicago. It is an important annual event where affected families have access to the world’s top leukodystrophy physicians and researchers. Held over two days, the conference aims to provide the latest scientific information to keep families informed on advances in the field, and also...
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