Our MLC Consortium, a group of clinical MLC experts founded this year, has just released their first statement in the...
WHAT WE DO
We help accelerate the research on Megalencephalic Leukoencephalopathy with Subcortical Cysts (MLC) and provide assistance to the affected families.
HOW WE DO IT
We work with scientists globally to unite MLC families, create a patients registry and accelerate the research on how MLC works and can be treated.
HOW YOU CAN HELP
You can help us make our dream a reality. Join our Patients Registry, make a donation, organize a fundraiser or a conference, become a volunteer.
We are a group of passionate, determined, action-oriented and ambitious parents
who share the dream that one day every person affected by MLC will have the chance
to live a long and healthy life.
WE ARE HERE TO HELP YOU!
Are you a newly diagnosed MLC family or overwhelmed by the progress of the disease? We can help you. We have Country Ambassadors, helpful resources, and a family network who feels your challenges and can support you.
MEET THE FAMILIES
My son Kuzey was born at 31 weeks. He stayed in the incubator for 1 month. During that period, there was no problem in the analysis and examinations. It was said that they would recover withgood care at home only…
YOUR DONATION SUPPORTS OUR RESEARCH
WE NEED YOUR HELP
Participate in the Patients Registry.
Make a donation to help us fund this project.
If we do not do it, no one else will!
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