The first ever MLC Scientific Symposium took place on February 22-23, 2024 hosted by Alliance MLC. Physicians and researchers around...
February 28, 2024March 23, 2024
The ULF Family Conference
The ULF Family Conference takes place on June 28-29, 2024 in Chicago. It is an important annual event where affected...
October 26, 2023March 23, 2024
MLC Consortium’s Take on Anakinra
Our MLC Consortium, a group of clinical MLC experts founded this year, has just released their first statement in the...
April 30, 2023March 23, 2024
Upcoming MLC Registry
Alliance MLC, with the support of our International Medical Consortium, is establishing a global patient registry. A registry is a...
April 30, 2023March 23, 2024
The ULF Family Conference
The ULF Family Conference takes place on June 23-24, 2023 in Chicago. It is an important annual event where affected...
April 27, 2023March 23, 2024
Meet Aidan and his family in Canada!
Hello, we are Marla and Ron Chapleau and we have 3 children, all of whom are adults now. It is...
April 27, 2023March 23, 2024
Meet Lorenzo and his family in Italy!
Lorenzo is 16 years old and has MLC1. We found out about the disease when he was 8 months old;...
April 27, 2023March 23, 2024
Meet Kuzey from Turkey!
My son Kuzey was born at 31 weeks. He stayed in the incubator for 1 month and was released with...
April 27, 2023March 23, 2024
Meet Carlee and her family in the US!
In the spring of 2022 our youngest daughter Carlee had a seizure. In the days and months that followed, an...
June 6, 2016March 23, 2024
Meet the Haeger family in the US!
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