The ULF Family Conference took place on June 28-29, 2024 in Chicago. This is an important annual event where affected families have access to the world’s top leukodystrophy physicians and researchers. Held over two days, the conference aims to provide the latest scientific information to keep families informed on advances in the field, and also guide them on improving the quality of their life, while living with a leukodystrophy patient.
There was an MLC session where updates were given by Dr. Van der Knaap and other MLC experts including Dr. Assumpcio’s and her gene therapy advancements, and the patients registry which is about to be launched worldwide. It is crucial that families, especially those based in the US, attend this important event in person or online. If you have any questions or need assistance, please contact us.